Leaping livers 10 years on still lapping the lagoon
Janine Sawyer1, Brooke Andersen1.
1Department of Gastroenterology, The Children's Hospital, Westmead, , Sydney, Australia
Introduction: Leaping Livers Lapping the Lagoon was concieved in 2012 by 3 Clinical Nurse Consultants (CNC) from the Children's Hospital Westmead, Sydney to support the Liver Transplant Unit, the largest paediatric liver transplant unit in Australia. The annual event is a 9km walk around the liver shaped Narrabeen Lagoon on the Northen Beaches of Sydney. The aim of the walk is to raise awareness of childhood liver disease, organ donation and transplantation, whilst raising vital funds for our unit. The walk promotes a culture of activity, participation and engagment between hospital staff, families and the community.
Methods: We will describe the evolution of this much loved entity within our transplant unit and how this has increased awareness of childhood liver disease, organ donation and transplantation, ultimately improving outcomes for patients and families. The 3 CNC's embraced multiple new roles negotiating council applications, hospital approvals and insurance policies. Fundraising required engagement with a fundraising manager, recruiting and managing volunteers, designing marketing paraphernalia (t-shirt, hats) and managing media commitments.
Results: Our first walk in 2015 was a great sucess, a day full of fun, food, laughs and great family and community participation. Ten years on Leaping Livers continues to bring families and staff together, raises awareness of childhood liver disease, the importance of organ donation and how liver transplantation transforms lives. Leaping Livers connects patients and their parents with other families, sharing the difficulties associated with childhood liver disease and the fear of transplanation, allowing them to actively contribute to improving outcomes for children with liver disease. Leaping Livers has raised over $600,000 AUD which has been used to fund a music therapist, support research and provide vital surgical and medical equipment.
Conclusion: Our team have been overwhelmed by the paediatric liver community support created by Leaping Livers, as we continue to strive to improve outcomes for children with liver disease and those needing transplantation.
Leaping Livers enabled us, the nursing staff, to create a change of culture and encourage participation of patients, families, staff and the community in an inclusive, fun manner in a non-hospital environment.